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The Magnolia Project
Building a comprehensive longitudinal dataset capturing women’s lived experiences to transform women’s health from a field of fragmented, cross-sectional snapshots into one with true understanding of disease and health history.
The Problem
Women’s Health has been understudied and underfunded: resulting in clear gaps in knowledge, delayed diagnosis, poor health outcomes and inadequate patient information.
Our Solution
Oral history methodology generates innovative data asset:
• Preliminary data from 10 interview demonstrates feasibility, scalability and data value.
• Unique approach in systematic collection of women's health narratives.
• Rich qualitative data that complements clinical and other existing datasets.
Impact
The Magnolia Project data set has value to multiple stakeholders.
• Access to validated information, reduced isolation, better health literacy (for society + patients)
• Identification of gaps in care for better patient outcomes (for healthcare providers)
• Earlier intervention, reduced cost (for payers)
• Generate new hypothesis for ongoing research (for researchers)
• Systematic patient evidence for policy-making, health equity solutions (for government)
• Real-world evidence, patient preference data, unmet needs identification (for pharma + medtech)
Mission
By systematically capturing and analyzing women's health experiences, this project takes a crucial first step toward closing critical knowledge gaps and improving health outcomes for 165+ million women in the United States.
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